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Product Identifiers

PublisherSt. Martin's Press

ISBN-100312289081

ISBN-139780312289089

eBay Product ID (ePID)2216744

Product Key Features

Number of Pages256 Pages

Publication NameMoonrise : a Family's Journey Through Muscular Dystrophy

LanguageEnglish

SubjectNeurology, People with Disabilities, Children with Special Needs

Publication Year2003

FeaturesRevised

TypeTextbook

AuthorPenny Wolfson

Subject AreaFamily & Relationships, Biography & Autobiography, Medical

FormatHardcover

Dimensions

Item Height1.1 in

Item Weight14.6 Oz

Item Length8.6 in

Item Width5.7 in

Additional Product Features

Intended AudienceTrade

LCCN2002-035813

Dewey Edition21

IllustratedYes

Dewey Decimal362.1/96748/0092 B

Edition DescriptionRevised edition

SynopsisMoonriseis Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family., Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

LC Classification NumberRJ482.D78W656 2003